Cayenne Wellness Center Hosts 17th Annual Sickle Cell Disease Educational Summit Focusing on Pain Management and Advocacy
TL;DR
Cayenne Wellness Center's summit offers healthcare professionals exclusive access to emerging treatments and physician insights to enhance clinical expertise and patient care outcomes.
The four-day hybrid summit features structured tracks on FDA therapies, advocacy, pain management, and specialized sessions for patients and physicians from September 17-20, 2025.
This event advances sickle cell awareness and equitable care through education, community support, and honoring warriors' resilience to improve lives globally.
Experience unique physician stories, a Dee Dee Simon concert, and the SCAR Stories exhibit blending art with powerful sickle cell narratives.
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Cayenne Wellness Center will host its 17th Annual Sickle Cell Disease Educational Summit from September 17–20, 2025, as a hybrid event in San Jose, California, and online. This four-day gathering brings together healthcare professionals, educators, social workers, students, individuals with sickle cell disease, families, and the broader community to advance education, advocacy, and awareness for sickle cell disease and trait.
The summit's theme, "Let's Talk About Pain: The Seen and Unseen," underscores the urgent need to address both the physical and emotional dimensions of sickle cell disease. Day one focuses on FDA-approved therapies, emerging treatments, and curative options, providing clinicians with updated medical knowledge. Day two covers advocacy, emergency room experiences, incarcerated care, nurse training, sickle cell trait education, newborn screening, and includes a Celebration of Life ceremony honoring those affected by the disease.
A groundbreaking session titled "Doctor to Doctor: What It's Like to Live With and Treat Sickle Cell" will feature nine physicians who live with sickle cell disease. This event, scheduled for September 19 from 6:00 PM to 8:30 PM PST at Scott's in Oakland, California, represents a unique convergence of lived experience and clinical expertise. These doctors will share powerful stories that challenge the healthcare community to rethink approaches to pain, trust, and treatment, potentially reshaping medical education and patient care standards.
Additional highlights include the Tribute to Our Golden Warriors celebrating individuals aged 70+ living with sickle cell disease, the SCAR Stories Exhibit transforming visible and invisible scars into artistic works, and a private screening of J Snow's documentary "You Look Fine" that reveals hidden struggles of sickle cell warriors. The summit concludes with an awards ceremony and benefit concert featuring award-winning R&B vocalist Dee Dee Simon, whose performance embodies resilience and empowerment.
Registration and accommodation details are available at https://cayennewellness.org/scd-educational-summit-2025. This summit matters because sickle cell disease disproportionately affects Black and brown communities, and inadequate pain management remains a significant healthcare disparity. By centering both patient experiences and clinical perspectives, the event aims to create new standards of care that address the full spectrum of sickle cell-related pain and improve health outcomes for this underserved population.
Curated from 24-7 Press Release
