Global Virtual Marathon to Spotlight Sickle Cell Community on World Sickle Cell Day 2025

The Cayenne Wellness Center and Children's Foundation, alongside the Global Alliance of Sickle Cell Disease Organizations (GASCDO), is set to host a 24-hour global virtual marathon on June 19, 2025, in celebration of World Sickle Cell Day. This event, titled 'Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy,' seeks to bring together individuals from around the world to raise awareness, promote education, and provide support for those affected by sickle cell disease and trait.

Featuring educational sessions led by healthcare professionals, inspiring stories from individuals and caregivers, and a showcase of talents within the sickle cell community, the marathon underscores the importance of global solidarity and local action in addressing the challenges faced by those with sickle cell disease. Dr. Carolyn Rowley of Cayenne Wellness Center emphasized the event's role in highlighting the community's resilience and talent, while Biba Tinga of GASCDO highlighted the opportunity to learn from and be inspired by warriors and caregivers globally.

This initiative represents a significant step forward in fostering a deeper understanding of sickle cell disease, advocating for better support systems, and celebrating the achievements and spirit of the sickle cell community. By focusing on education, advocacy, and community support, the event aims to make a lasting impact on the lives of those affected by sickle cell disease worldwide.